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What it is

Proposal for financial help to care for children with rare diseases

Amendments step 3 of 7 · Unfinished

It is a members’ bill. Introduced by parliamentary groups, the Senate, regional governments or citizens. It was introduced on 20 November 2020. Introduced by: Senado.

Official title: Private member's bill to amend article 42.1.c of Royal Legislative Decree 8/2015, of 30 October, approving the consolidated text of the General Social Security Law.

Follow this law

Source: Congreso de los Diputados, file 124/000006· updated 11 Nov

Automatic summary, not yet reviewed

  1. The proposal starts from the fact that Spain has more than 3 million people with rare diseases. Many families must travel outside their province or abroad to find treatment, and they pay those travel costs themselves.
  2. Parents who travel with their children usually take unpaid leave, so they stop earning their salary during the trip. Those travel costs are not subsidized by any public administration.
  3. The bill would expand the Social Security system's coverage. It would include caring for minors or dependent people with a rare disease when they must leave home for more than three days to receive treatment or take part in a clinical trial.
  4. If passed, the law would take effect the day after its publication in the Official State Gazette (Boletín Oficial del Estado).

Who it affects

  • Minors and dependent people with rare diseases who need treatment or clinical trials away from home.: They would be the reason for a new Social Security benefit, if the proposal is passed.
  • Parents who travel with their children to treatments outside their province or abroad.: They could receive a financial benefit to cover caring for the child during those trips of more than three days.

Words worth knowing

Acción protectora
The set of benefits and aid that Social Security can provide depending on a person's situation.
Ensayo clínico
Clinical trial: a study with people to test whether a treatment or drug works and is safe.
Prestación económica
Money paid by Social Security in certain situations, such as illness or caring for a child.
Incapaces
People who, due to their condition, cannot look after themselves or manage their own affairs.

It summarizes the text as it was introduced. It is written by artificial intelligence and may contain mistakes: the official text is what counts. Read the official text · How we make summaries

Where it stands

How far did it get?

It took 3 of 7 steps. It reached Amendments, and today it is unfinished.

  1. Introduced20 November 2020Someone registers the text in the Congreso.
  2. Admitted30 November 2020The Bureau of the Congreso accepts it and, for a members’ bill, the plenary decides whether to consider it.
  3. Amendments4 December 2020Groups propose changes.
  4. Committeenot reachedA committee goes through the text in detail.
  5. Plenarynot reachedAll 350 deputies vote.
  6. Senatenot reachedThe Senate can pass it, amend it or veto it.
  7. BOEnot reachedIt is published in the Official State Gazette (BOE) and comes into force.
See the 5 official steps on a timeline
Dec 2020Dec 2021Dec 202211. 20 November 2020: Presentación22. 30 November 2020: Comisión de Trabajo, Inclusión, Seguridad Social y Migraciones Publicación desde 30/11/2020 hasta 04/12/202033. 30 November 2020: Calificación44. 4 December 2020: Comisión de Trabajo, Inclusión, Seguridad Social y Migraciones Enmiendas desde 04/12/2020 hasta 30/05/202355. 30 May 2023: Concluido - (Caducado) desde 30/05/2023 hasta 16/06/2023

Was there a plenary vote?

We have no plenary vote linked to this law in the Congreso’s data.

What happens next

What happens now?

The legislature ended before it finished. To go on, someone would have to introduce it again in the new Cortes.

It has not been presented again yet.

The same initiative in the other chamber:

Sources

Where does all this come from?

  • The data comes from the open files of the Congreso, the Senate and the BOE, unaltered.
  • Each deputy’s province is the one of their seat on the day of the vote.
  • We only say “passed” or “rejected” when the majority needed is certain; otherwise we say which side had more votes.

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